Tuesday, March 8, 2011

Wyatt James- HLHS Warrior

On March 1,2010 Jillian and Lucas learned that their baby boy had a severe heart defect, Hypoplastic Left Heart Syndrome.Out of many different congenital heart defects, HLHS is the most severe. They were given the options of termination, compassion care, heart transplant, and a series of 3 surgeries to rewire his heart. Jillian and Lucas chose the surgeries.

Wyatt James Greeno was born July 13, 2010 via csection. He had his first surgery, the hybrid-norwood on July 16th. On July 23 the surgeons had to go back in to tighten his PA bands. After his surgery they discovered he had a large clot and was tested for clotting disorders. They found out Wyatt had the MTHFR gene. Because of his clotting it made his heart situation more complicated. Wyatt finally got to go home with his mommy and daddy on Aug.6th.

Wyatt continued to be monitored closely by a home health nurse. On Mondays he went to get his echos and check ups. He did have to be readmitted for his clots at times. On Decemeber 9th Wyatt went in for his heart cath. He got to go home from that on Decemeber 17th.

January 19, 2011 Wyatt went in for his 2 operation, the Hybrid Norwood Stage2. He came out of surgery and was doing very well. Things took a turn for the worse when a clot developed in Wyatts pulmonary artery. The drs tried very hard to prevent the clot by medicating him after surgery, much sooner than they would have liked. They tried to ballon and break the clot. When that wasnt successful they tried a medicine to bust the clot up. Things continued to cascade and Wyatt coded. He was put on the ECMO machine but his organs continued to fail. He passed away on January 24, 2011. Wyatt was only 6 months old.

To read more of his story you can check out his caringbridge page. http://www.caringbridge.org/visit/wyattgreeno/journal/10 His story above is shortened from this caringbridge page.

I never got meet Wyatt. I have never met his mother in person either. I was part of a pregnancy group with a bunch of mommys that were due in July. I kept up with Jillian and Wyatt. I prayed for them.

Wyatt is a warrior. He is a strong baby boy. Beautiful sweet chubby cheeks. A smile that just radiated so much happiness. Jillian and Lucas are amazing people. I know that Wyatt really did get the best parents ever. They gave him a chance at life and then fought for that life until the very end. They cherished him. He adored them. He always had a smile on his face, such a happy looking baby.

Wyatt was put here with us for such a very short time but he will be rememberd for a lifetime. It was an honor for me to get to be apart of his journey through his mommy.

www.facebook.com/wyattswarmth

2 comments:

  1. I pray for his better health. I wish he will get well soon. Really so many heart defects he has and how painful it is for him!

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  2. I found this blog post via a google search. My son was also named Wyatt James and we delivered on 6/6/10. He too had HLHS and didn't make it through a fetal intervention procedure at 29 weeks gestation. My heart goes out to this Wyatt's family and all of the heart families out there.

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